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“You are clumsy, you always fall.” But after years he makes a shocking discovery




They always made fun of her, saying, “You’re clumsy, you always fall. Stand on your feet ». And she suffered from it, she was desperate. She was angry with herself. Until she made the dramatic discovery of her that changed her life. Her name is Chloe Cullenis 26 years old and her story has been told in the British media, most notably by the Daily Mirror.

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The girl, teased for years, was actually suffering from a rare disease, the syndrome at Ehlers Danlos. An inherited collagen disease characterized by joint hypermobility. Which does not allow her, among other things, to walk as she would like. Her body can be contorted in various ways. Her feet can turn inwards at a 45 degree angle. It was her hyper-mobile joints that caused her to fall countlessly. On one occasion, she also broke both her ankles following a tumble. A disability that also causes severe pain in the joints and constipation. Conditions that can last up to six weeks straight, without giving her a respite.

Chloe’s Tale

The girl granted a lengthy interview to the tabloid The Mirror: «My fingers are more flexible than those of other people, when I keep my hands straight they rise more. I can also bring my thumb back and touch my wrist. My knees go inward, as do my feet. I’ve lost count of how many times I’ve fallen in my life. ” «They always considered me clumsy, precisely because of the falls, but of course it was Ehlers Danlos – says the girl – I broke both my ankles playing mini golf in 2017. They gave in. It was very painful. Now I have to wear the anklets if I go out walking ».

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The pains

Chloe, of LowestoftSuffolk says the syndrome also causes constant pain in her joints: “It’s the biggest problem I have – he stresses – I take painkillers every day, but they are not enough to completely eliminate the pain.” When she was younger, doctors and relatives thought she was simply suffering from “growing pains,” she said. The disease also causes her constipation: “Many people with Ehlers Danlos have problems with their digestive system,” she says. Her disability, inherited from her, has never been diagnosed to any of her relatives. Her symptoms only became severe when she reached 20 years of age. Finally, in April, she finally found out from a rheumatologist that she had the syndrome.




Last updated: Monday 1 August 2022, 09:45



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