Data analysis and customization of processes will provide a greater decision-making capacity for patients, which will become the “Protagonists” of the medicine revolution. This is one of the conclusions reached by the participants of the second round table of the Genomic Medicine conference organized by Roche Farma Spain, which however have warned of the skepticism that still prevails among citizens when providing their information to health workers and researchers.
In fact, only five percent of patients give their consent to participate in these types of trials, he pointed out. Teresa Ramos, Head of Personalized Medicine at Roche Farma Spain, during the second round table of the “Personalized Medicine Conference: realities, challenges and opportunities”. An encounter in which they have also taken part White angel, Director of Organization, Processes and ICT of Quirónsalud; Alfonso Valencia, director of the Life Sciences department of the National Supercomputing Center; the scientific popularizer Silvia Leal and the Minister of University, Innovation and Digital Transformation of the Government of Navarra, Juan Cruz Cigudosa.
The speakers have analyzed the challenges that arise around the collection and management of data applied to personalized medicine, a goal for which there is still a journey. This has been indicated by Juan Cruz Cigudosa, who has emphasized that it is still difficult to imagine a health professional looking at the computer in his office the complete genome of a patient to recommend a medication. “It is something that involves the Department of Health, the digital and the economic, because it costs money,” he highlighted.
It also happens, Alfonso Valencia added, that the health sector and the scientist still have very little biological data on patients, and those that exist are “heterogeneous”. “We have to be able to combine information of a very different nature with different meanings for complex problems, we are very at the beginning ”, has assumed. The head of the National Supercomputing Center has set the United Kingdom as an example to follow, which is at a much more “advanced” stage in the field of creating genotypic databases, although such information is “difficult to incorporate into the field. clinical ”due to the “Resistance to innovation” health systems.
Ángel Blanco, from Quirónsalud, has agreed with him, who has refused to be “paternalistic” with patients to convince them of the benefits of providing their data, and has stressed that his growing “role” will constitute “the great change in Medicine” because it will allow them to “be able to decide.” “All this should lead us to reflect that data is not just for science, but for the improvement of the service. The patient seeks immediacy, transparency and personalized treatment, and we must anticipate this ”, he concluded.
“The engine” of the medicinal revolution
In the words of Teresa Ramos, people are “The engine to make the data available.” “Information is power, it allows us to be much more efficient in research. They help us to generate hypotheses, in the development of drugs and in the regulatory part “, has pointed out the person in charge of Personalized Medicine at Roche Farma España, who has asserted that” the ambition “of her company” is to have three to five times more profit in ten years with more treatments ”and“ at half the cost to society ”.
“But to guarantee that, data is needed,” he stressed. In this sense, he has emphasized the need for there to be a “Everyone’s donation” in order to achieve “that efficiency of the health system”, something that is not yet taking place.
Silvia Leal has attributed this reality to the “Mistrust” and even “fear” which still generates among citizens the fact of offering private information to science. One of the reasons, he added, lies in the “fake news” that is generated on the internet “for fun” and that confuses people about what to do with this type of data. “We have to manage our privacy well, but these personal data are for the advancement of science. If we do not share them, we are going to have a problem ”, he had an impact.
“You are the owner of your data, but if you share them you will benefit“Concluded Cruz Cigudosa, who has pointed out that, apart from this, for the emergence of personalized medicine, infrastructures, training of patients and professionals and even a” legal ethical framework “that” right now we do not have “will also be essential.
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