Fight between electoral officials inside the Roberto Clemente Coliseum

A physical altercation between electoral officials occurred tonight inside the Roberto Clemente Coliseum after the arrest of the general scrutiny.

The moment was captured on video, and reflects how tempers began to heat up inside the cage of the State Elections Commission after the PNP electoral commissioner, Héctor Joaquin Sánchez, gave instructions that no official moved from the tables despite the fact that the scrutiny director announced the stoppage of work

While the director of the scrutiny tried to address the officials, a fight was formed at a nearby table that multiple people tried to separate.

The protagonists of the altercation would have been removed from the interior of the Colosseum after the incident.

See the video here:

Here you can listen to this new episode of the Con Los Editores podcast:

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Trump involves the entire government in his fight against legal results

Donald Trump, at Wednesday's ceremony for soldiers killed in combat

Donald Trump, at Wednesday’s ceremony for soldiers killed in combat
AFP

The Joe Biden’s popular vote advantage over Donald Trump in the elections in which the Democrat has been elected president of the United States, he already exceeds five million votes. The unfounded accusations of fraud of the Republican continue to crumble due to their lack of weight and have already collapsed seven of the lawsuits filed in court since the polls closed last Tuesday. Biden and the overwhelming majority of the country and the world function as normal as having an elected president. With Trump, however, nothing is normal.

Dazed in his refusal to accept defeat, the president continues to file demands, this same Wednesday adding another in Michigan. It has managed to undermine faith in the elections and the results in an extremely worrying way among Republican voters. And it is making movements unprecedented in the country’s history, using all the power of the federal government to resist the dictates of the ballot box, including the extension to the traditionally apolitical Department of Defense of the intense politicization of departments that has taken place under his mandate.

Purge and loyalty

First came the dismissal of Mark Esper, a former arms executive who had been in charge of the Pentagon since 2019 and who always had a complicated relationship with Trump. This was finally strained in June, when Esper showed his firm opposition to Trump’s idea of ​​appealing to the Insurrection Law of 1807 and deploy troops against Americans participating in demonstrations against racial injustice. They also clashed over Esper’s support to eliminate names associated with racism from military bases, for budgetary issues and for military movements raised by Trump such as the withdrawal from Afghanistan.

The dismissal opened a cascade of substitutions in Defense Tuesday they verify a Trump purge and a reshuffle where loyalty is the main asset, raising political operatives who have been nurturing conspiracy theories about the “deep state.” On Tuesday, for example, the undersecretary in charge of policy at the Pentagon, James Anderson, who had stopped other Trump political appointments, resigned. And the man who will take over is Anthony Tata, a retired military man who had to withdraw his nomination for that same post this summer when bipartisan opposition in the Senate soared when it was revealed that had called Barack Obama “terrorist leader” or to Islam “the most violent oppressive religion.”

There were also resignations and replacements of the Pentagon’s deputy intelligence secretary and the chief of staff. And in this last position Trump has elevated Kash Patel, who until now has been an ally of the president to try to undermine investigations into Russia’s interference in the 2016 US elections.

The agenda and fear

According to a government source who has spoken under the protection of anonymity with ‘Politico’, “Trump sees the Pentagon as the leader of the resistance to his agenda.” And that agenda openly includes the withdrawal or withdrawal of troops around the world, but it also provokes fear because of the possibility that Trump considers deploying the military if there were tensions in the streets in this transition that he himself is making volatile.

That ghost has been open since June, when he considered the possibility and also when he repressed peaceful protesters in Washington to take a photo with a bible in front of St. John’s Church next to the White House. Esper and Mark Milley, the general who chairs the Joint Chiefs of Staff, posed, but then acknowledged that doing so was a mistake, and Milley recalled that “politics has no place” in the Army.

It worries that Trump is asking for it. And Democratic Congressman Seth Moulton has said that expect “President Trump to do nothing in the next few weeks that I put General Milley and the Joint Chiefs of Staff in a position to have to make a partisan decision on a political, civil matter. ”

Also Adam Smith, the Democrat who chairs the Armed Services committee in the Lower House, has warned that the changes in the leadership of the Pentagon will exacerbate “unique threats” facing the US during the transition. “It is a destabilizing move that will only embolden our adversaries and put our country at greater risk.”

Republicans believe the lies

A poll by ‘Politico’ and ‘Morning Consult’ published this Wednesday has detected that 70% of Republicans do not believe that the US elections were free and fair, which shows the depth of Trump’s message, even if it is false. In another poll by ‘The Economist’ and ‘YouGov’, the percentage of Trump voters who say that Biden has not won legitimately rises to 86% and even more, to 88% of those who say that both in the 2016 and 2020 have voted immigrants without papers.

Less than half of the participants in the second poll believe that there will be a peaceful transition. Several extremist, supremacist and far-right groups that have endorsed the president, from the Proud Boys to Oath Keepers, are preparing a concentration for this weekend in Washington.

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Guterres calls to combat the “virus” of anti-Semitism

The Secretary General of the United Nations, António Guterres, has warned this Tuesday that, together with the coronavirus, the “virus” of anti-Semitism and other forms of hatred are spreading, something that must be fought along with “the lies and hatred” that led to the rise of Nazism and that fracture current societies.

“In recent months, a constant stream of prejudice has continued to ruin our world: anti-Semitic assaults, harassment and vandalism; holocaust denial; a guilty plea in a neo-Nazi plot to blow up a synagogue “, among others, Guterres lamented.

Given this, he has advocated a “return to reason” and a rejection of “the lies and hatred that drove the Nazis and that fracture today’s societies” during his acceptance speech for the Theodor Herzl Prize, awarded by the World Jewish Congress.

The highest representative of the UN, likewise, has emphasized that “hatred does not discriminate and when societies fall into repression and violence, we are all vulnerable.”

The award ceremony, held virtually due to the health crisis, coincided with the anniversary of ‘Kristallnacht’, or ‘the night of broken glass’, an operation ordered by the Nazis on November 9 and 10, 1938 during which dozens of Jewish homes, businesses and synagogues were destroyed.

He has referred to this attack through his Twitter account to ensure that “It was not only the night of broken glass, it was the night of broken lives, families, societies and dreams. “

And, 82 years later “a constant stream of anti-Semitism and hatred continues to plague our world“, so” we must stand together and speak out against hate in all its forms. ”

Guterres has also used the occasion to make a new call for a global ceasefire “so that the world can focus on fighting its common enemy, the coronavirus.”

Finally, he added that the United Nations continues to be a “firm ally in the essential fight to defend the equality and dignity of all.”

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This synthetic mini-antibody fights Covid-19

R.I

Madrid

Updated:

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The ability of SARS-CoV-2 to infect cells depends on interactions between the viral ‘spike’ protein and the human cell surface protein ACE2. To allow the virus to ‘latch on’ to the cell surface, the ‘spike’ protein binds to ACE2 via three finger-like bumps, called receptor binding domains (RBD).

Therefore, blocking these domains has the potential to prevent the virus from entering human cells. This can be done using antibodies.

The nanobodies, small antibodies found in animals like camels and llamas, show promise as anti-virus tools because to its high stability and small size. Although obtaining them from animals requires a lot of effort, technological advances now allow rapid selection of synthetic nanobodies, called ‘sybodies’.

This is what the laboratory of Markus Seeger from the University of Zurich (Switzerland) where a technological platform has been developed to select ‘sybodies’ from large synthetic libraries.

Nanobodies, tiny antibodies found in animals like camels and llamas
Nanobodies, tiny antibodies found in animals like camels and llamas – ABC File

Using these libraries, the Christian Löw group of EMBL in Hamburg (Germany) sought to identify the best ‘sybodies’ that could prevent SARS-CoV-2 from infecting human cells.

First, they used the RBDs of the viral ‘spike’ protein as a bait to select the sybodies that bind to them. In a second phase, they tested the ‘sybodies’ selected according to their stability, efficiency and precision of union.

To test whether ‘sybody 23’ can neutralize a virus, a different virus, called a lentivirus, was used, modified to carry the SARS-CoV-2 spike protein on its surface.

One named ‘sybody 23’ it was found to be particularly effective in blocking RBDs.

Finally, to test whether the ‘sybody 23’ can neutralize a virus, a different virus, called a lentivirus, was used modified to carry the SARS-CoV-2 spike protein on its surface.

And they observed that ‘sybody 23‘successfully inactivated the modified virus in vitro.

Researchers are now doing new studies to confirm whether this system could stop SARS-CoV-2 infection in the human body.

The results of this study suggest a possible future treatment for covid-19.

See them
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Vitamin D can negatively affect the course of the coronavirus

Yesterday, 12:53 | author: Ivan Egorov | Photo ru.depositphotos.com

Experts spoke about the danger of excess amounts of vitamin D in the body, as well as its properties in the fight against Covid-19.

It is known that the “sunshine” vitamin strengthens the immune system. British scientists managed to prove its effectiveness in the treatment of coronavirus.

However, as noted by the head of the sector of applied phytovirusology, Moscow State University. Lomonosov Nikolay Nikitin, when taking a vitamin, you need to take into account some of the nuances. He explained that the positive effect is observed only in patients with a deficiency of the substance, and its overabundance may, on the contrary, increase the risk of complications.

The head physician of the private ambulance service Lev Averbakh also warned about the danger of uncontrolled intake of vitamin D. The specialist clarified that vitamin complexes are taken only as prescribed by a doctor based on the results of a blood test. He recalled that you can get the vitamin when you are in the sun. The doctor recommended to include in the diet such foods as cod liver, oily varieties of marine fish, mushrooms, beef liver, cheese and egg yolk to fill the deficit.

Allergist Vladimir Bolibok also warned that an excess of vitamin B can provoke kidney stones. He clarified that taking vitamins does not protect against infections. The specialist called sunbathing in combination with the consumption of oily fish more effective.

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France outlaws the first association in its fight against radical Islamism

French President Emmanuel Macron promised this Tuesday that in the next few days the Government will intensify its actions against radical Islamism, after a terrorist beheaded Samuel Paty, a secondary school teacher who had shown his students the controversial cartoons of Muhammad, on Friday outside Paris. Macron assured that he will go from words to deeds. “We know what must be done. These are acts that our fellow citizens expect. These acts will intensify “in the coming days and weeks, the head of state promised.

Among other measures, the president announced that this Wednesday the dissolution of the pro-Palestinian group Cheikh Yassine will be approved by the Council of Ministers for being “Directly involved” in this Islamist attack, according to Macron. Cheikh Yassine was founded by the radical Islamist militant Abdelhakim Sefrioui, who appears in the so-called ‘S file’ of people likely to represent a danger to state security due to their radicalization.

Sefrioui is among those arrested after the professor’s beheading. This radical Islamist accompanied the father of a student to see the principal of the school where Samuel Paty taught to complain that the teacher had shown his class the cartoons of Muhammad in a lesson on freedom of expression. Together they later made a video attacking the teacher that they disclosed on social networks and it went viral. The murderer of Samuel Paty, a Russian refugee of Chechen origin named Abdoulakh Anzorov, was in contact with the student’s father through WhatsApp in the days before the crime, according to the French press.

Interior Minister Gérald Darmanin announced on Monday that the government wants to dissolve several organizations that it considers “Enemies of the Republic”, among them the Collective against Islamophobia in France (CCIF) and the Muslim NGO Baraka City. But Macron did not mention them in his statements yesterday to the press.

Brahim C., the father of the student who was the origin of the social media mobilization against Professor Paty, made a call to contact the CCIF in a video on Facebook. This organization, created in 2000, is presented as an association in defense of human rights whose mission is fight Islamophobia. But many in France consider it “the Trojan horse” of Islamism, according to the weekly ‘Le Nouvel Obs’. Some even accuse her of being linked to the Muslim Brotherhood, which they deny.

Under suspicion

The CCIF assures that they have “nothing to do with the harassment campaign that led to the vile Conflans-Sainte-Honorine attack.” They explain that the father of the student contacted them to open a file for discrimination, based on the fact that Professor Paty would have asked Muslim students to leave the classroom in the course of freedom of expression in which he taught the cartoons of Muhammad.

This association ensures that they asked the father to immediately remove the video and stop talking about this matter until someone from the organization contacted him. The professor was beheaded before they could. «By accusing us, no proof of being responsible or even linked to this abominable act, the Ministry of the Interior is signing the end of the rule of law, “the CCIF denounces on its website. This organization maintains that for years the French Government has been developing “a repressive strategy of persecution, which seeks to politically kill any protest … in the name of ‘freedom of expression'”.

In the interior minister’s point of view there is also the Islamic humanitarian aid organization Baraka City, which does charities in popular neighborhoods with strong immigration and is very active on social networks.

Close to the Salafists, it is founded by Idriss Sihamedi, also included in the ‘S file’ for being susceptible radicalization. Those responsible for this NGO assure that “it has not committed any illegal act that justifies its dissolution.

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Continue the fight against fire sources in Traslasierra – Summary 3

More than 150 personnel from around thirty fire stations and four fire hydrant planes They work this Thursday in the combat operation on the fire in the La Toma area, in the San Alberto department.

The fire destroyed a beekeeping venture, while already 100 people returned to their homes that had been evacuated preventively to protect them from the toxicity emanating from the smoke, according to Chain 3 the mayor of the town of Ámbul, Claudia Bustos.

The tranquility returned to the town during the day of Thursday, after the brigadistas managed to control the flames in the vicinity of a residential area.

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“We were scared because it passed very close to home. We had to leave and they took us to school because of so much smoke. In my case, the shed burned a little,” lamented a woman.

While one man argued that the situation was “very difficult” because people were very scared. “The wind did not help, they had to take people out and take them to schools,” he said.

Staff from the Provincial Fire Management Plan, Civil Defense, Córdoba Police, tanker trucks from the municipality of Salsacate and the commune of Tala Cañada, and an ambulance from Ámbul also participate in all the affected sectors.

The meteorological conditions of this Thursday do not favor the combat of the flames, since gusts of north wind and temperature are registered that exceeded 30 °.

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Wounded

In the middle of the fire a firefighter was bitten by a snake. The last medical part reports that stable and out of danger, but that will continue in the health facility.

Further, a brigadista from Tanti was injured with burns to his face and arm. He was treated and transferred urgently to the Mina Clavero Hospital.

Another firefighter, from the Despeñaderos barracks, aged 38, He suffered 1st degree burns on the arm and 2nd degree burns at the lumbar level. He burned working on the middle road in Santa Rosa area, Ambul town

A 22-year-old civilian who was helping carrying water, He fell out of a private truck and hit his head. He is under observation at the Mina Clavero Hospital.

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Since Sunday

The fire, which is burning grasslands, native forest and palm trees, had started after noon on Sunday in the vicinity of the Mussi area and spread until it reached the outskirts of the commune of Ámbul, 40 kilometers north of Villa Cura Brochero.

The Salsacate Cooperative reported that 10 poles, 20 spreaders and 600 meters of high voltage cable have been lost, which is why the area remains without electricity service.

Report by Roberto Fontanari and María Eugenia Pasquali.

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German courts overturn rules to combat coronavirus epidemic

German courts are contributing to the confusion and irritation of the German population before the different national and regional regulations to combat the coronavirus epidemic with sentences, in some cases even contradictory with other courts, that overturn or confirm the decisions made by politicians. This is the case of the sentence handed down this Friday by the Administrative Court of Berlin that demolishes the order to close bars, clubs and restaurants from 11 p.m. to 6 a.m., in force since last weekend by order of the Senate regional of the German capital. Sentence agrees with the owners of 11 Berlin stores who had filed an urgent complaint against the municipal order considering it disproportionate and arguing that the closure of gastronomic establishments will make young people meet in other places where there are no hygiene concepts. Curiously, the same sentence confirms the dry law issued by the Berlin Senate and that prohibits the sale and consumption of alcohol in public spaces at the same time, among other things because the gastronomes did not refer to it in their complaint. The judges of the Berlin Administrative Court also consider this prohibition valid due to the fact that the danger of “disinhibition” resulting from the consumption of alcoholic beverages is avoided and that it can lead to the neglect of hygiene and physical distance rules.

They also establish that their sentence only favors the 11 complainant bars and clubs, which despite everything will not be able to continue serving alcohol after 11 p.m., and initially excludes the rest of Berlin’s thousands of bars, clubs and restaurants from its benefits. The judges’ decision is appealable to Berlin’s Higher Administrative Court, an option that will likely be used by both foodies and city authorities. It is not the only case in which the German judges do not resolve doubts, but also contribute to accentuate them. The prohibition issued by some German Länder to host national tourists from localities or risk areas in hotels or holiday homes in their regions has also given rise to contradictory or at least curious sentences. Three superior administrative courts have so far intervened before this controversial decision. The first this Thursday in the state of Baden-Württemberg.

The Mannheim judges lifted the ban issued by the Stuttgart government by agreeing with a family from North Rhine-Westphalia, who argued that the veto arbitrarily and disproportionately prevented their holidays in Regensburg. The complainants also explained that presenting the mandatory negative coronavirus test with an age of less than 48 hours to be able to travel was impossible due to the saturation of the laboratories in their region and that it also entailed too high a cost. For the affected family with three children it was an additional cost of 154.91 euros. The judgment of that court is applicable to the entire state located in southern Germany and in it the judges especially criticized the disproportionate prohibition. Hours later the High Administrative Court in the state of Lower Saxony issued a similar verdict and overturned the ban on lodging citizens from risk regions issued by the Hanover regional government.

In the opposite direction, however, judges in the northern state of Schleswig-Holstein reacted in a provisional sentence to a similar lawsuit brought by a family from Recklinghausen who saw their vacation on the island of Sylt in the North Sea frustrated. When assessing the accommodation ban, the Higher Administrative Court of Schleswig ruled that “if compliance with the regulations were now suspended, people from risk regions could come to Schleswig-Holstein in an uncontrolled manner, which in view of the published figures on the increase in infections, it could pose a relative threat to public health services. As a result of the first two judgments, several German federal states have already announced that they will lift the ban on accommodation for national tourists from risk regions, also due to signals from the German Constitutional Court that apparently considers the measure illegal. Executives from Bavaria and Hesse announced today that they will lift the ban before Sunday and other regions are expected to do the same.

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France is taking decisive action – Kommersant FM – Kommersant

The French authorities are preparing to fight against Islamism after another terrorist attack in the country. On October 29, in the center of Nice, a man with a knife killed three people in a church, shouting “Allah Akbar”. Several hours later, police prevented three more similar attacks in Avignon, Lyon and Paris. The terrorist attack in Nice was committed by a native of Tunisia. According to police, he arrived in Italy, and then illegally moved to France. President Emmanuel Macron said the French have come under attack for their values ​​and taste for freedom. The politician promised not to give up.

What steps should Emmanuel Macron take? Tatyana Parkhalina, Advisor to the Director of the Institute of Scientific Information for Social Sciences of the Russian Academy of Sciences, is confident that the French authorities will restrict the influx of migrants: “The French president is in a very difficult situation. It has already been stated that the policy of multilateralism in Europe has been defeated. But at the same time, representatives of Islam make up a significant part of the country’s population. The grandchildren of those people who once came to France in the 50-60s and wanted to integrate into society are involved in the protests. But then the next generations realized that they were on the social sidelines.

At the same time, freedom of expression is very important for French society. Often in Russia, when you start talking about it, they don’t understand it. How can this be reconciled? Now President Macron faces a very difficult task. I do not think it will come to prohibitions in migration policy. But it is quite possible that some restrictions will be introduced.

However, the reduction of migrants is again to step on those European values ​​that the EU and France defend.

Of course, at the level of the European Union, we see what solidarity the countries of the commonwealth have shown towards France. At the same time, they understand that there must be a general answer, not just French. However, relations with Turkey complicate the solution of this problem. After all, let’s not forget that Erdogan took over the functions that Gaddafi used to have – the containment of migrants. And every time he blackmails Europe by saying that he can open the borders, and this is a very serious factor. “

On October 16, near Paris, a native of Moscow, a Chechen who received refugee status in France, beheaded the teacher because he showed cartoons of the Prophet Muhammad during the lesson. Emmanuel Macron promised to protect secular values ​​from radical Islam, after which Turkish leader Recep Tayyip Erdogan called on his fellow citizens to boycott French goods. Actions against French policy were also held in Palestine, Yemen and Syria. The head of Chechnya, Ramzan Kadyrov, also spoke out against Macron. Then “Kommersant FM” discussed this topic with the head of the Center for French Studies at the Institute of Europe of the Russian Academy of Sciences, Yuri Rubinsky. He suggested that the French authorities should simply wait out the wave of accusations. However, now, after a series of attacks, Macron needs to react harshly, the scientist is convinced:

“I think he will have to react, otherwise he will lose public support. And after a year and a half, the presidential elections. It is very important for Macron to preserve, on the one hand, the values ​​of identity and not turn them into a red rag of social and political discontent among Muslims living in Europe. How to do it? How to split the Muslim world and prevent it from uniting under the anti-French, anti-Western flag is the main question. This is a very difficult business. I would add one very important thing that we underestimate. The story of the conflict over cartoons takes place in completely non-standard conditions – now the coronavirus pandemic is raging. This is very important, because the most vulnerable segments of the population are those that are economically and socially disadvantaged, in many respects it is immigrants, in particular, Muslims. Even without this story with cartoons, the discontent of this part of the population was inevitable. “

If the authorities do not take the necessary measures, political opponents of Emmanuel Macron can take advantage of this, believes Yekaterina Kuznetsova, candidate of political sciences, expert on France: will begin a campaign against radical Islamic ideas.

It seems to me that this is a shock of such magnitude that the authorities understand that they, in fact, have carte blanche from society for tough decisive measures.

If they don’t, there could be long-term electoral consequences. “

For several days in Moscow, rallies have been taking place near the French embassy a few dozen meters from the building of the Ministry of Internal Affairs. Those gathered oppose Charlie Hebdo magazine and chant “Allahu Akbar”. The Moscow police, which for the first few days did not interfere with the protesters, on October 30, nevertheless decided to disperse those who came. The authorities recalled that the action had not been approved.

Ivan Yakunin

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When the patient pays for the investigation of his ailment | Science

What is not covered by the general, economic or commercial interest, is covered by the interest of the family members. They have no other choice. That is the situation that surrounds rare diseases, those that affect one person for every 2,000 inhabitants. The relatives of these patients have learned that associationism is the only way, or the best way, for governments, pharmaceutical companies and researchers to pay attention to them. In the last decade above all, these associations have developed a crucial task not only in raising funds, but also in making rare diseases visible, creating support networks for families who have a patient of this type and even lobbying to politicians.

Ignacio J. Molina, professor and researcher at the University of Granada and its Center for Biomedical Research. He has just won a contribution, together with José Luis García Pérez, of almost 120,000 euros in a competitive call to research innovative treatments for patients with Ataxia-Telangiectasia, a rare disease. But he has not gotten it from any ministry or project of the European Union. It was awarded by Actionfor AT, an English association of patients with this disease. In 1012, he got another one worth just under 100,000 euros from the same source. But it is not only money that Molina appreciates coming to him from these associations. Appreciate, for example, that they approach laboratories to patients. “In rare diseases we need closeness to patients and their families, something difficult due to the circumstances themselves. And that is something that many of these associations facilitate us, ”explains Molina, who emphasizes that obtaining a group of several dozen patients is an almost impossible task without these family networks.

The associations also have a political front. In Andalusia, in September 2017, the Andalusian Parliament approved a non-legislative proposal on primary immunodeficiencies (PID), promoted by an association of patients and presented by the Popular Party, which urged the Government (then the PSOE) to establish in Andalusia neonatal screening for this disease. The measure involved an expense of 450,000 euros per year, which is equivalent to the “cost of treatment for a year for some of them not diagnosed at birth”, according to the proposal. However, neither the then nor the current government, of the party that promoted the initiative, have implemented the measure.

Spain has a Spanish Federation of Rare Diseases, Feder. Jordi Cruz chairs the section of Catalonia and is director of the Association of Mucopolysaccharidosis and Related Syndromes (MPS): “The path to research and knowledge of any of the 7,000 pathologies is often opened by families or patient associations. At first, you start raising funds with charity concerts in your town or neighborhood, Christmas lottery sale and, fortunately, at some point the money arrives. gordo, that of a company ”. One million euros has been raised since 2003 by the association he chairs. “At first everything was used for research. At first it is difficult to get the attention of the pharmaceutical companies. When the results appear, the pharmaceutical companies already enter because, as they tend to be useful in sister diseases, they begin to see profitability, “explains Cruz. In this well-directed research phase and with some commercial interest on the table, the Cruz association turned a little use of its budget for another fundamental task: supporting the sick and their families. “Improving living conditions and supporting the sick and those around them is necessary and the system barely covers that area,” he explains. Cross.

When the results appear, the pharmaceutical companies already enter because, as they tend to be useful in sister diseases, they begin to see profitability

In the Dravet Syndrome Foundation they have managed to raise between three and four million euros in just under a decade, says its president, José Ángel Aibar. His latest contribution to the research has been in species. They have commissioned US laboratories to develop genetically modified mice with Dravet syndrome. The last one, says Aibar, has cost 35,000 euros. An important saving for the researcher who needs it: the mouse is at his disposal. This foundation diversifies, like all, its tasks. They have a “family respite” program to help those who travel to receive treatment and are also focused on giving the syndrome as much visibility as possible. For this they have created Retodravet, a solidarity team of athletes that takes advantage of their sports participation to raise funds and explain their objectives.

The associations are made up of volunteers but their operation is very professional. The Dravet Syndrome Foundation, for example, has a research director who, to summarize, guides all the work avoiding energy loss. In the case of Ignacio J. Molina, he will not receive the almost 120,000 euros from England and goodbye. You will receive them, partially, every six months and after justifying your activity. Sean Kelly, Director of Action for TS, explains that his institution has a “highly qualified peer-review and multidisciplinary medical advisory panel, as well as a grant management process” that has been awarded for its good practice. Action for TS has raised just over 2.5 million euros in 8 years.

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Institutional collection

The Spanish Foundation for Science and Technology (FECYT) launched in 2014 It falls, a platform to “promote the dissemination of scientific knowledge … and offer a new tool for financing and citizen participation” based on the upward trend in patronage that it had been detecting, the institution explains. In these years, the collection has been just over one million euros, which has meant, they have, 12,000 euros on average for 85 projects that, previously, have been registered on the platform. The profile of the donor is more frequent: woman with university education between 25 and 44 years old. The average donation is 59 euros for individuals and 998 for legal entities.

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